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Dementia Support from Lived Experience

My Story

I didn’t enter dementia care through a classroom — I entered it through real life.After moving to the UK, I found myself supporting people living with dementia long before I properly understood the condition. What began as “just a job” became over seven years of ongoing, hands-on dementia care, often living under one roof with individuals affected by the condition.Those years — and the work I continue to do today — taught me more than any manual ever could. Dementia isn’t just about memory loss. It’s about identity, emotion, communication, and the quiet strain it places on families.

What families usually need isn’t another checklist. They need clarity. They need reassurance. They need someone who understands the messy, human reality of caregiving.

Where My Dementia Journey Began

Like many people, my journey into dementia care began suddenly — without training, preparation, or emotional armour.I had moved to the UK with plans to work in fitness, but life had other ideas. I took a role in a care home, and within days I was placed in a dementia unit with minimal training and no warning.It was chaotic, understaffed, and confronting. But instead of stepping back, something in me leaned in.

I stopped seeing people as tasks to complete and began seeing them as human beings trying to make sense of a world that no longer behaved as expected. That realisation changed everything — and it shaped the work I do today.

What I Do Now

Today, I support families living with dementia at home — particularly in the early and confusing stages. Many people come to me when something feels “not quite right”: before a diagnosis during the long waiting period or when dementia starts to show itself more clearly at home I help caregivers understand what they’re seeing, make sense of behaviours, and respond in ways that reduce stress for both them and their loved one. My work is grounded in ongoing hands-on care, alongside coaching families online and in person. I offer: Family coaching for clarity, confidence, and communication Short-term, in-person respite support so caregivers can breathe Digital tools and checklists for everyday dementia life

Stories and videos that help people feel less alone

My Approach

My work is rooted in clarity, dignity, and emotional intelligence.Every behaviour is communication. And both people — the person living with dementia and the caregiver — are being challenged.I don’t use medical jargon. I don’t overwhelm families with theory.Instead, I offer calm, honest guidance that helps you understand what’s happening behind the confusion, the repetition, or the behaviour — and how small changes in approach can make a big difference at home.

Every family is different. So I meet you where you are — with empathy, straight talk, and deep respect for everyone involved.

  If you’re unsure where to start, start here. A simple conversation can bring clarity.  

Nzilani Wa'Nziani
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